Sneaky Flare

Photo of a hand full of pills. Caption reads: "There are different kinds of lupus flares."

Sneaky Flare blog post by Iris Carden

There’s different kinds of lupus flares.

There’s the kind that hits you out of nowhere – hits you with sudden pain, exhaustion, sore joints, rashes, headaches, anything else you can think of.

There’s the kind that builds up slowly. You’re fine one day, the next a bit of pain, and then sudden agony.

Then there’s the sneaky one. This is the one you don’t even realise is happening, until you see the results.

This is what’s been happening to me lately. I suddenly realised I haven’t eaten a proper meal in weeks, I’ve done the bare minimum, and apart from making sure I’ve got a post for this site each day, I haven’t really achieved anything. I lived on ensure for a week, then bought frozen pre-made meals.

I was, without even thinking about it, conserving energy, because I was seriously short of it. I didn’t have the aching muscle and joint fatigue of a normal flare, just an extreme lethargy.

Going through it, I didn’t even have the energy to think about what I was doing or why.

Now that it’s starting to pass and I can look around at all the things that haven’t been done, I’ve realised I was in a flare. I’m not cooking much yet, but I’m making very simple meals, so I’m not just having things from the freezer. I’m walking the dog, which didn’t happen for a couple of weeks. I’m far from back to “normal”, but I’m well on the way.

I still don’t have a lot of energy, but I have some.

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By Iris Carden

Iris Carden is an Australian indie author, mother, grandmother, and chronic illness patient. On good days, she writes. Because of the unpredictability of her health, she writes on an indie basis, not trying to meet deadlines. She lives on a disability support pension now, but her ultimate dream is to earn her own living from her writing.

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